The history of the association

It all started when Docent Margaretha Berg from Hässleholm made an inquiry about the interest of creating an association in order to form an organized support for patients diagnosed with Sipple's syndrome.

This was in the beginning of the 1980s, and almost all of us involved belonged to the same family. Nothing strange with that, since the disease is hereditary and Dr. Margaretha worked at a hospital close to us. Margaretha wrote her doctoral thesis about Sipple's syndrome in the 1970s.

The first meeting with the new association gathered about twenty people. We understood at that point that this association was important, especially in the future when more people would get the same diagnosis.

A committee was appointed, regulations were written and genealogical research was performed. There were letters from priests who had read estate inventories, and there was "cousin data" from America.